Genetics---HUH, what, I DO not speak your language... & BEACH update

Genetics "people" continue to amaze me...We received our test results last week. Kenadee has two broken genes...none of which my results showed. Dennis' tests revealed that the same two broken pieces that Kenadee has, Dennis does also. This is a mystery as Dennis doesn't have any of the characteristics that Kenadee has. We now go back to the drawing board so to speak. The geneticist from ACH will be meeting with us towards the end of April to discuss what happens next. 

I teach third graders and most are learning English. When I talk to genetic counselors & geneticists, I'm reminded of what they feel like..."huh, what, I do not speak your language."

BEACH UPDATE! **total raised $1,250**

 We are so stinkin' lucky to know people read our story and feel the need to help! Our Facebook fundraiser has raised $550. We have had another $500 donated from an organization whose founder is a mom of two special needs children, and we've  had $200 donated from friends.  Our condo is paid for!  Now, just gas (fingers crossed gas isn't $5 a gallon), and food & we are on our way!

I was worried about taking Kenadee 13 hours away from her doctors and our support group.  At the same time, life is too short to worry about the "what-ifs?" God is working through people and allowing us this opportunity, which would otherwise be impossible. Hospice is helping get equipment set up & we can call her neurologist anytime we need her! We're taking our baby to the beach & what a wonderful memory that will be. We can never thank all our supporters enough....THANK YOU from the bottom of our hearts xoxoxo!