Wednesday, October 24, 2012

It has been forever!

It has been too long since my mommy last posted! Life has been kinda crazy lately. I spent almost two weeks in & out of the hospital in August. That was no fun. My doctors first thought I had pneumonia. They later learned that I had fluid in/on my lungs that just wasn't going away. My heart isn't able to get rid of the fluid that my body needs to get rid of. My mommy & daddy took me to my specialist who told them that I have 3-6 months left on this earth. My mommy and daddy aren't believing that and are not giving up hope! If there is one thing that is always for sure...it's that there is always HOPE. God can work miracles; I know that because he created me.

I am in hospice and am now taking special medicines to help me get rid of the fluid. Since, I've been out of the hospital, I've been doing great. I have a machine that keeps track of my heart and oxygen levels. It makes mommy & daddy feel better because they know if there is something wrong at night. I hate that machine because it beeps a lot!

My daddy is working a lot at night & I miss him when he's gone. He's thinking about working part time soon to help mommy with me. The winter months are the hardest on my respiratory system. I know that I have tons of prayers going up for me everyday & I couldn't be more thankful! You're never going to guess what I get to do in a couple of weeks---- I get to be in a beauty paegant! My mommy is so excited...daddy too but he's a guy and girls just get more excited about that kind of stuff.

I hope that you continue to share my story with friends & family. My goal is to raise awareness about mitochondrial disorder and how it hurts families. I wish I had more followers!

Thanks Friends--xoxoxoxo,
Kenadee Rachelle