It has been forever!

It has been too long since my mommy last posted! Life has been kinda crazy lately. I spent almost two weeks in & out of the hospital in August. That was no fun. My doctors first thought I had pneumonia. They later learned that I had fluid in/on my lungs that just wasn't going away. My heart isn't able to get rid of the fluid that my body needs to get rid of. My mommy & daddy took me to my specialist who told them that I have 3-6 months left on this earth. My mommy and daddy aren't believing that and are not giving up hope! If there is one thing that is always for sure...it's that there is always HOPE. God can work miracles; I know that because he created me.

I am in hospice and am now taking special medicines to help me get rid of the fluid. Since, I've been out of the hospital, I've been doing great. I have a machine that keeps track of my heart and oxygen levels. It makes mommy & daddy feel better because they know if there is something wrong at night. I hate that machine because it beeps a lot!

My daddy is working a lot at night & I miss him when he's gone. He's thinking about working part time soon to help mommy with me. The winter months are the hardest on my respiratory system. I know that I have tons of prayers going up for me everyday & I couldn't be more thankful! You're never going to guess what I get to do in a couple of weeks---- I get to be in a beauty paegant! My mommy is so excited...daddy too but he's a guy and girls just get more excited about that kind of stuff.

I hope that you continue to share my story with friends & family. My goal is to raise awareness about mitochondrial disorder and how it hurts families. I wish I had more followers!

Thanks Friends--xoxoxoxo,

Kenadee Rachelle

Hair cut & gift from Minnie Mouse!

Whew! It's been a while since my mommy posted in the blog! We have been so busy this summer. Guess what--I got my hair cut! My mommy's friend-since-high-school, Jon, took very special care of me. 

Minnie Mouse heard about me and my story! She sent me a package in the mail to let me know she was thinking about me. How cool is that--Minnie is so sweet! Here is a picture of what I got !

 

Photo Book

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The new way to make a photo album: photo books by Shutterfly.

MommY, Daddy, & tattoos!

This is my mommy & daddy. They were so thankful that they were able to take me to the ocean! 

Things marked off my list in Florida!
Get a tattoo

Go to an aquarium

Eat ice cream

 Sleep with mommy & daddy because there is a boogyman in my closet

 Listen to the ocean

See a dolphin

While we were in Florida, they got to parasail! They said it was so much fun! Daddy took a video of the entire thing but we'll post that later, once we figure out how! The tried three different times before the weather cooperated and it wasn't too windy. 800 feet in the air is crazy-high!

I had "getting a tattoo" on my bucket list. My mommy wants a real one, but she's a big chicken so we got the fake kind! We love dolphins so this worked perfectly! Papa texted mommy to make sure they weren't real--silly poppa!

Each time I post an update, please share Kenadee's story by updating your social networks, talking to friends & coworkers. Let's get the word out about Mitochondrial disease! Let's help find a cure so that no more mommies, daddies, & Kenadees have to be affected!

 

FudPucKeRs & Alligators

We went to Fudpuckers. It's a really fun restaurant in Destin. We got to hold a real alligator! We also got to write our name on anything we wanted to! Mommy wrote our name on an upside down metal bucket. I think that was pretty cool! I fell asleep though ;(. The manager was very nice to us and helped us get around. It's kinda hard at some places because of my wheelchair. While we were there, something weird happened to mommy. While we were eating, a very pretty lady and her family were also eating in the outdoor part of Fudpuckers. There was glass that separated her from us but she could still see me ;). She looked at me, then at mommy, and had tears in her eyes. My mommy was confused at first..she then read the pretty ladies lips as she said.."I'm so sorry, & she's so beautiful." My mommy didn't know what to say but was reminded what others may see when they see me. They may be sad because I am in a wheel chair or I have an oxygen tube. Mommy & daddy aren't sad about that, they are just happy when I'm healthy and able to be out & about. Mommy thought a lot about that pretty lady for the rest of that night. I definetly leave marks on people's hearts when they see me.

 

Things marked off my list in Florida!

Get a tattoo

Go to an aquarium

Eat ice cream

 Sleep with mommy & daddy because there is a boogyman in my closet

 Listen to the ocean

See a dolphin

 Each time I post an update, please share Kenadee's story by updating your social networks, talking to friends & coworkers. Let's get the word out about Mitochondrial disease! Let's help find a cure so that no more mommies, daddies, & Kenadees have to be affected!

Destin pt. 3...I got in the ocean!

 

Each time I post an update, please share Kenadee's story by updating your social networks, talking to friends & coworkers. Let's get the word out about Mitochondrial disease! Let's help find a cure so that no more mommies, daddies, & Kenadees have to be affected!

Daddy to me into the ocean. I was scared at first, but then I got used to it! I like to relax, and listen to the ocean but the pool is my favorite ;)! The ocean is kinda scary. I think I'd rather relax in my beach chair!

Things marked off my list in Florida!

Get a tattoo

Go to an aquarium

Eat ice cream

 Sleep with mommy & daddy because there is a boogyman in my closet

                          Listen to the ocean

See a dolphin

Destin Part 2...The aquarium!

 

We went to the Gulfarium Aquarium! It as amazing! We saw a dolphin show, had our pictures taken with a sea lion, & saw lots of really cool sea animals. Nana & mommy got to feed seals!

Things marked off my list in Florida!

Get a tattoo

Go to an aquarium

Eat ice cream

 Sleep with mommy & daddy because there is a boogyman in my closet

                                                                     Listen to the ocean

See a dolphin

Do you see the dolphins swimming in this picture!?

                                           

 

Each time I post an update, please share Kenadee's story by updating your social networks, talking to friends & coworkers. Let's get the word out about Mitochondrial disease! Let's help find a cure so that no more mommies, daddies, & Kenadees have to be affected!