Spring Break=Rain!!

It's been a while since I posted! Kenadee, Dennis, & I are doing great! My grandma let us use her timeshare so we have been in Branson for spring break!! It was so nice for us to get out the house....especially for Dennis because he spends most of his days inside the house with Kenadee. We've walked around a lot & had Kenadee out tons which makes me nervous but all
is good so far!

I thought it would be a good idea to go to a timeshare "presentation" so we could get free tickets to Dixie Stampede and the Six show...we listened to a salesperson for 3 hours!! Good news was it was raining, so there wasn't lots we could do otherwise & we got free tickets!!

We're getting used to traveling with the oxygen tanks etc...its a pain bc one tank lasts between 1-2 hours. On the flip side, the oxygen is helping K so much! This week is her fundraiser at school & we feel SOOO lucky to have an outpouring of people who want to help us make our wish come true. We are stinkin' lucky in so many ways.

XOXO

Special thanks to my house-sitter, Anna, this week!!

Woo-Hoo!

I am so behind blogging! Things are going great...K is staying healthy & Circle of Life Hospice are a saving grace. Kenadee's fundraiser went great on Thursday night!! I'll update with total amounts raised next week. So, I've never been a person without words, ever. Lately, I am speechless a lot. I'm so lucky to have friends, nurses, doctors, counselors, & family that love Kenadee just as much as Dennis and I do!

The road that we are on has been tough, but we are so lucky..lucky beyond words that I can even express.

I also feel like when something is "easy," it's suppose to be. For example, getting Kenadee to the beach has been simple..not hard, not stressful...it's almost like people need something good in their lives..like all we hear about is bad things, bad people, and bad choices. Kenadee is the opposite...pure, angelic, innocent. Kenadee lifts the spirit, reminds us to slow down, not take things for granted, to love because we want to-not because we get something in return. Kenadee is love and love is Kenadee!!

Hope4kenadee...

Genetics---HUH, what, I DO not speak your language... & BEACH update

Genetics "people" continue to amaze me...We received our test results last week. Kenadee has two broken genes...none of which my results showed. Dennis' tests revealed that the same two broken pieces that Kenadee has, Dennis does also. This is a mystery as Dennis doesn't have any of the characteristics that Kenadee has. We now go back to the drawing board so to speak. The geneticist from ACH will be meeting with us towards the end of April to discuss what happens next. 

I teach third graders and most are learning English. When I talk to genetic counselors & geneticists, I'm reminded of what they feel like..."huh, what, I do not speak your language."

BEACH UPDATE! **total raised $1,250**

 We are so stinkin' lucky to know people read our story and feel the need to help! Our Facebook fundraiser has raised $550. We have had another $500 donated from an organization whose founder is a mom of two special needs children, and we've  had $200 donated from friends.  Our condo is paid for!  Now, just gas (fingers crossed gas isn't $5 a gallon), and food & we are on our way!

I was worried about taking Kenadee 13 hours away from her doctors and our support group.  At the same time, life is too short to worry about the "what-ifs?" God is working through people and allowing us this opportunity, which would otherwise be impossible. Hospice is helping get equipment set up & we can call her neurologist anytime we need her! We're taking our baby to the beach & what a wonderful memory that will be. We can never thank all our supporters enough....THANK YOU from the bottom of our hearts xoxoxo!